• Latest News

  • Browse Topics

Spinal muscular atrophy: What is it?

GlobalPost

If you were asked which genetic disease is the number one cause of death among babies in the United States, chances are spinal muscular atrophy would
San Clemente-based Hope for SMA, which works to fight spinal muscular atrophy, will present a dinner-and-entertainment fundraiser Friday night at Franciscan Gardens in San Juan Capistrano. 50% off! $25 for [...]

Read More

Spinal muscular atrophy: What is it?

GlobalPost

Avery Canahuati was diagnosed with Spinal Muscular Atrophy, or SMA, which leads to weakness in the muscles,More >> AP Exclusive: Activist now wants to leave China AP Exclusive: Activist now wants to leave China AP National News VideoMore>> By TOM RAUM
Avery Canahuati was diagnosed with Spinal Muscular Atrophy, or SMA, which leads to weakness in [...]

Read More

Avery the 'bucket list' baby dies after inspirational battle with spinal …

New York Dai

ABC News (blog)'Avery's Bucket List': Five-Month Old Girl With Spinal Muscular Atrophy DiesABC News (blog)The little girl's lung collapsed and she went into cardiac arrest Monday afternoon, her father, Michael Canahauati
Logan, 12, of Brewer who lives with spinal muscular atrophy, will visit Walt Disney World to have a Jedi Training Academy experience at Hollywood Studios [...]

Read More

Avery the 'bucket list' baby dies after inspirational battle with spinal …

New York Dai

A newborn baby's battle with spinal muscular atrophy inspired her parents to start a bucket list blog. HULIQ reports on Avery's Bucket List blog, a site that aims to spread awareness of Avery's illness, which progressively
ABC News (blog)'Avery's Bucket List': Five-Month Old Girl With Spinal Muscular Atrophy DiesABC News (blog)The little girl's lung collapsed and [...]

Read More

Avery the 'bucket list' baby dies

New York Dai

By Scott Davis – email BELLAIRE, TX (RNN) – A baby whose parents created a "bucket list" that went viral has died. Avery Canahuati was diagnosed with Spinal Muscular Atrophy, or SMA, which leads to weakness in the muscles,More >> A sentence was handed
With a bucket list just shy of 200 goals, Avery's list is [...]

Read More

Avery's Bucket List: Parents pen blog for baby dying of spinal muscular atrophy

CBS News

If you were asked which genetic disease is the number one cause of death among babies in the United States, chances are spinal muscular atrophy would
Repligen licensed RG3039 in 2009 from Families of Spinal Muscular Atrophy (FSMA), a patient advocacy organization that funded and directed the preclinical devel.
Repligen licensed RG3039 in 2009 from Families of [...]

Read More

Avery's Bucket List: Parents pen blog for baby dying of spinal muscular atrophy

CBS News

A newborn baby's battle with spinal muscular atrophy inspired her parents to start a bucket list blog. HULIQ reports on Avery's Bucket List blog, a site that aims to spread awareness of Avery's illness, which progressively
There is increasing focus on RNA metabolism in motor neuron diseases such as amyotrophic lateral sclerosis (ALS), also known as [...]

Read More

Avery's Bucket List: Parents' Website For Infant With Spinal Muscular Atrophy …

Huffington P

TUCSON, Ariz., April 25, 2012 /PRNewswire-USNewswire/ — Repligen Corp., in Waltham, Mass., announced today that its experimental drug RG3039, designed to trea.
There is increasing focus on RNA metabolism in motor neuron diseases such as amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, and spinal muscular atrophy (SMA), the leading genetic cause of infant [...]

Read More

Orioles rally to beat Athletics 5-2

Fox News

In a short ceremony on the field before last night's game honoring Frank Robinson, the Orioles Hall of Famer told the crowd that within a couple of years the good times would be coming back. We have heard this before, as we
The Orioles pull off a stupendous 5-run rally in the 9th to stun the [...]

Read More

Spinal Muscular Atrophy: Avery's Bucket List Blog Raises Awareness Of The …

Huffington P

Brooklyn, who has the genetic disease spinal muscular atrophy, has overcome great odds. / Kevin Pieper/The Baxter Bulletin Kelly Carter, a physical therapist at Child & Youth Pediatric Day Clinic, puts new leg braces on 2-year-old Brooklyn Marie Gould
Lizzy has Spinal Muscular Atrophy Type 1 and is a miracle! She has NEVER been able to [...]

Read More